RYR-1-Related Diseases International Research Workshop:

From Mechanisms to Treatments

July 21 - July 22, 2022

Hyatt Regency Pittsburgh International Airport

Pittsburgh, PA, USA

This will be the first-ever patient-led international research workshop to be devoted exclusively to RYR-1-related diseases, preceding the 2022 RYR-1 International Family Conference. The overall goals of this international workshop are to provide a forum that unites leading international RYR-1 disease experts (researchers, clinicians, and geneticists) with patients, family members, and patient advocates to share knowledge, exchange ideas, form collaborations, and develop new strategies for finding therapies. The Workshop Organizing Committee includes a diverse group of researchers/clinicians in RYR-1-related diseases, members of The RYR-1 Foundation’s Scientific Advisory Board (SAB), and RYR-1-related patients. 

To view the preliminary agenda, please click HERE.

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Grant Recognition

The RYR-1 Foundation would like to thank the Muscular Dystrophy Association for their support of the RYR-1-Related Diseases International Research Workshop: From Mechanisms to Treatments. We are extremely grateful for the MDA's grant to help us host this one of a kind conference. On behalf of all individuals and families affected by RYR-1-related diseases, The RYR-1 Foundation expresses our sincerest gratitude.

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Thank you to our generous sponsors!

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