RYR-1-Related Videos​

Documentaries

RYR-1 Foundation Documentary

Introduction to RYR-1 Family Conferences

Brentney's Story

Extended Trailer: "Hodgson" Documentary

RYR-1 Overview

Nolan's Story

Trailer: "Hodgson" Documentary

"Run, Walk, or Roll 5K/1K” Fundraiser

Interviews

Interview: Malignant Hyperthermia

Interview: Role of Calcium in RYR-1

Interview: Coronavirus (COVID-19) & RYR-1-Related Diseases: Webinar with Dr. Oscar "Hank" Mayer

Online Presentation and Q&A Session: Role of Calcium in RYR-1-Related Diseases

Interview: "Hodgson" Virtual Premiere: 

Webinar with Cody Hodgson

Interview: Dr. Michael Goldberg (President) and Nicole Becher (Program Director): Clinical Care Guidelines: What Patients & Families Need to Know About RYR-1-Related Diseases

www.ryr1.org/ccg

Lectures

Lecture: Malignant Hyperthermia

Lecture: Introduction to RYR-1 Myopathy

Lecture: Introduction to Myopathy & Dystrophy

Lecture: How to Interpret Your RYR-1 Genetic Testing Results

Lecture: Role of Calcium in RYR-1 

Lecture: What are Rycals

Lecture: Introduction to RYR-1-Related Diseases

Lecture: Orthopaedic Complications of RYR-1-Related Diseases

Lecture: Pulmonary Complications of RYR-1-Related Diseases

Please note that the views expressed in these videos may not be the views of the RYR-1 Foundation.

Please consult with your physician.

Contact: 

P.O. Box 13312, Pittsburgh, PA 15243

© 2014 by The RYR-1 Foundation. 

Phone:

412-529-1482

The information provided by The RYR-1 Foundation on this site or by any links to this site is for educational purposes only. It should not be interpreted as a recommendation for a specific treatment plan, product, medical, or healthcare provider. Use of this web site does not replace medical consultations with a qualified professional to meet the individual’s needs. In addition, medical information can change rapidly; therefore, some information may be out of date, and/or contain inaccuracies or typographical errors. Ultimately, if you have concerns about your health, particularly RYR-1 related diseases, you should consult your health care provider.