ANNOUNCEMENT: Jennifer Nay Ryan, MBA, a trustee of the RYR-1 Foundation, has been named as the RYR-1 Foundation's Vice-President for Fundraising, Development, and Patient Outreach. Jeni was responsible for this summer's RYR-1 International Family Conference in Baltimore. (For more information on this tremendously successful event, please go to www.ryr1.org/conference). This role will allow Jeni to build on the momentum gained at the Family Conference to bolster our fundraising and develop an international community of affected individuals and families. We cannot think of a better person for this role, and the RYR-1 Foundation is lucky to have Jeni on our team. If you would like to get more involved with the RYR-1 Foundation, please contact jeni@ryr1.org.

September 7, 2016

Please reload

Featured Posts

I'm busy working on my blog posts. Watch this space!

Please reload

Recent Posts
Please reload

Archive
Please reload

Search By Tags

I'm busy working on my blog posts. Watch this space!

Please reload

Follow Us
  • Facebook Basic Square
  • Twitter Basic Square
  • Google+ Basic Square