To register for the 2020 RYR-1 International Family Conference, please click HERE
ANNOUNCEMENT: Jennifer Nay Ryan, MBA, a trustee of the RYR-1 Foundation, has been named as the RYR-1 Foundation's Vice-President for Fundraising, Development, and Patient Outreach. Jeni was responsible for this summer's RYR-1 International Family Conference in Baltimore. (For more information on this tremendously successful event, please go to www.ryr1.org/conference). This role will allow Jeni to build on the momentum gained at the Family Conference to bolster our fundraising and develop an international community of affected individuals and families. We cannot think of a better person for this role, and the RYR-1 Foundation is lucky to have Jeni on our team. If you would like to get more involved with the RYR-1 Foundation, please contact firstname.lastname@example.org.
September 7, 2016
I'm busy working on my blog posts. Watch this space!