ANNOUNCEMENT: Jennifer Nay Ryan, MBA, a trustee of the RYR-1 Foundation, has been named as the RYR-1 Foundation's Vice-President for Fundraising, Development, and Patient Outreach. Jeni was responsible for this summer's RYR-1 International Family Conference in Baltimore. (For more information on this tremendously successful event, please go to www.ryr1.org/conference). This role will allow Jeni to build on the momentum gained at the Family Conference to bolster our fundraising and develop an international community of affected individuals and families. We cannot think of a better person for this role, and the RYR-1 Foundation is lucky to have Jeni on our team. If you would like to get more involved with the RYR-1 Foundation, please contact jeni@ryr1.org.

September 7, 2016

Please reload

Featured Posts

I'm busy working on my blog posts. Watch this space!

Please reload

Recent Posts
Please reload

Archive
Please reload

Search By Tags

I'm busy working on my blog posts. Watch this space!

Please reload

Follow Us
  • Facebook Basic Square
  • Twitter Basic Square
  • Google+ Basic Square

Contact: 

P.O. Box 13312, Pittsburgh, PA 15243

© 2014 by The RYR-1 Foundation. 

Phone:

412-529-1482

The information provided by The RYR-1 Foundation on this site or by any links to this site is for educational purposes only. It should not be interpreted as a recommendation for a specific treatment plan, product, medical, or healthcare provider. Use of this web site does not replace medical consultations with a qualified professional to meet the individual’s needs. In addition, medical information can change rapidly; therefore, some information may be out of date, and/or contain inaccuracies or typographical errors. Ultimately, if you have concerns about your health, particularly RYR-1 related diseases, you should consult your health care provider.