Resources & Affiliations


In our ongoing efforts to disseminate the mission statement and activities of the RYR-1 Foundation in both funding research and/or in family support and outreach, we have developed productive relationships with several important organizations. They are listed below. 


The RYR-1 Foundation also participates in numerous, regular briefing sessions with pharmaceutical companies and consultants in both the United States and in Europe. Please click on the logos below to be forwarded to their websites! 

Support Guide for Families With Children Diagnosed With a Chronic or Terminal Illness: 

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We hope to continue to add more resources as we make more connections.
If you would like to be listed under our resources, please
contact us.