Resources & Affiliations


In our ongoing efforts to disseminate the mission statement and activities of the RYR-1 Foundation in both funding research and/or in family support and outreach, we have developed productive relationships with several important organizations. They are listed below. 


The RYR-1 Foundation also participates in numerous, regular briefing sessions with pharmaceutical companies and consultants in both the United States and in Europe.


Please click on the logos below to be forwarded to their websites! 

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We hope to continue to add more resources as we make more connections.
If you would like to be listed under our resources, please
contact us.


P.O. Box 13312, Pittsburgh, PA 15243

© 2014 by The RYR-1 Foundation. 



The information provided by The RYR-1 Foundation on this site or by any links to this site is for educational purposes only. It should not be interpreted as a recommendation for a specific treatment plan, product, medical, or healthcare provider. Use of this web site does not replace medical consultations with a qualified professional to meet the individual’s needs. In addition, medical information can change rapidly; therefore, some information may be out of date, and/or contain inaccuracies or typographical errors. Ultimately, if you have concerns about your health, particularly RYR-1 related diseases, you should consult your health care provider.