PROJECT 2

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Medical Literature.  We have started a collection of relevant articles from the medical literature on RYR-1 myopathy. We hope this serves as a "one-stop-shop" for people interested in learning more about this disease. Please check it out! If you would like an article posted, please contact us. 

PROJECTS

PROJECT 1

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Patient registry. Please join the patient registry to help us grow a patient database. Join the registry!

Contact: 

P.O. Box 13312, Pittsburgh, PA 15243

© 2014 by The RYR-1 Foundation. 

Phone:

412-529-1482

The information provided by The RYR-1 Foundation on this site or by any links to this site is for educational purposes only. It should not be interpreted as a recommendation for a specific treatment plan, product, medical, or healthcare provider. Use of this web site does not replace medical consultations with a qualified professional to meet the individual’s needs. In addition, medical information can change rapidly; therefore, some information may be out of date, and/or contain inaccuracies or typographical errors. Ultimately, if you have concerns about your health, particularly RYR-1 related diseases, you should consult your health care provider.