We had a very successful first RYR-1 International Family Conference in Baltimore, MD USA on July 22-24, 2016. Directly below are photos from the Conference.

Patient & Family Meeting at CHOP

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Please see the photos below from our FIRST patient and family meeting at Children's Hospital Of Philadephia on November 24, 2014.  

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Contact: 

P.O. Box 13312, Pittsburgh, PA 15243

© 2014 by The RYR-1 Foundation. 

Phone:

412-529-1482

The information provided by The RYR-1 Foundation on this site or by any links to this site is for educational purposes only. It should not be interpreted as a recommendation for a specific treatment plan, product, medical, or healthcare provider. Use of this web site does not replace medical consultations with a qualified professional to meet the individual’s needs. In addition, medical information can change rapidly; therefore, some information may be out of date, and/or contain inaccuracies or typographical errors. Ultimately, if you have concerns about your health, particularly RYR-1 related diseases, you should consult your health care provider.