We had a very successful first RYR-1 International Family Conference in Baltimore, MD USA on July 22-24, 2016. Directly below are photos from the Conference.

Patient & Family Meeting at CHOP


Please see the photos below from our FIRST patient and family meeting at Children's Hospital Of Philadephia on November 24, 2014.  



P.O. Box 13312, Pittsburgh, PA 15243

© 2014 by The RYR-1 Foundation. 



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