FOR IMMEDIATE RELEASE 

Contact: 

Nicole Wallace 

Program Director, RYR-1 Foundation

nicole@ryr1.org

(412) 529-1482

 

RYR-1 Foundation Benefit Dinner &
Screening of “Hodgson” Documentary

August 30, 2019 -  The RYR-1 Foundation, the only
organization in the world that exists exclusively to serve
the needs of and advocate for individuals with RYR-1
myopathy, hosted a Benefit Dinner and Screening of the
“Hodgson” documentary on Tuesday, August 27, 2019 at
7:00 pm at Mad Mex Shadyside (220 S Highland Ave,
Pittsburgh, PA 15206).

 

Supporters of the RYR-1 Foundation raised a total of
$6,150 at the event. This total significantly exceeded the
original goal of $5,000. The RYR-1 Foundation would like
to thank everyone for their generosity and support.

“Hodgson” is a 20-minute documentary that profiles Cody Hodgson, a former star in the National Hockey League, who was forced to retire at the age of 26 due to complications of RYR-1 muscle disease.


All proceeds went towards the RYR-1 Foundation to support its efforts in finding a cure for this inherited condition.

To view a trailer of “Hodgson,” please go to: www.ryr1.org/hodgsontrailer

 

“Hopefully, the RYR-1 Foundation and I can help to not only push for a cure, but also help the parents, patients, and families affected by RYR-1-related diseases now so that they can better understand their condition, take the appropriate precautions, and have a treatment available to them,” said Cody Hodgson.

 

“Because RYR-1 myopathy is so rare, the RYR-1 Foundation is not only supporting research to find a cure, but also attempting to raise awareness of this condition,” said Michael F. Goldberg, MD, MPH, President of the RYR-1 Foundation. “The recently produced “Hodgson” documentary does an incredible job of explaining how RYR-1 can affect a wide variety of individuals, including an elite athlete like Cody. The Mad Mex event was a great venue to demonstrate the important work of the RYR-1 Foundation.”

 

The RYR-1 Foundation is appreciative of the sponsors for this event:  

 

Silver Sponsors:

 

 

 

 

 

 

 

Additional Sponsors:     

About the RYR-1 Foundation

The Pittsburgh, Pennsylvania-based public charity was launched in October 2014 by members of the Goldberg family, who have been affected by RYR-1 muscle disease. It is currently the only organization that exists solely to advocate for and serve the needs of patients with RYR-1 myopathy, the most common cause of congenital myopathy. The mission of the RYR-1 Foundation is to support research leading to effective treatment or a cure for RYR-1 related diseases, to educate physicians about these diseases, and to provide patient/family support and advocacy. The RYR-1 Foundation is a public charity, designated as a 501(c)(3) by the IRS. To learn more about the RYR-1 Foundation, please go to: www.RYR1.org.

 

Scenes from the RYR-1 Foundation Benefit Dinner & Screening of “Hodgson” Documentary

Above: Lindsay Goldberg, Cody Hodgson, and Dr. Michael Goldberg at the RYR-1 Foundation Benefit Dinner & Screening of “Hodgson” Documentary

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Contact: 

P.O. Box 13312, Pittsburgh, PA 15243

© 2014 by The RYR-1 Foundation. 

Phone:

412-529-1482

The information provided by The RYR-1 Foundation on this site or by any links to this site is for educational purposes only. It should not be interpreted as a recommendation for a specific treatment plan, product, medical, or healthcare provider. Use of this web site does not replace medical consultations with a qualified professional to meet the individual’s needs. In addition, medical information can change rapidly; therefore, some information may be out of date, and/or contain inaccuracies or typographical errors. Ultimately, if you have concerns about your health, particularly RYR-1 related diseases, you should consult your health care provider.