The RYR-1 Foundation is a non-profit, 501(c)(3), public charity-- your donation is tax-deductible. 


“I personally thank God for the RYR-1 Foundation. Thank you for all of your work and help. My afflicted with this condition. [She] and her parents work hard to help raise money for this research. We pray someday for a treatment or, better yet, a cure!! Thank you from the bottom of our hearts!”

--- Aunt of an affected individual 

There are many ways you can make a donation to the Foundation, including check, credit card, securities (stocks, bonds, mutual funds, etc), and donor advised fund (DAF). This foundation is a non-profit, 501(c)(3), public charity-- your donation is tax deductible. 


If you would like to make a donation in honor or memory of someone, please email Lindsay at with the following information: who the donation is in honor or memory of, who we should notify about the donation, and the contact information of who we are notifying. 


Check: Please make checks payable to The RYR-1 Foundation. Checks can be mailed to:


The RYR-1 Foundation

P.O. Box 13312

Pittsburgh, PA 15243


Credit Card: Please click on the "Donate" button below. You will need to enter the amount you want to donate then choose your method of payment: "Log in to PayPal" or "Don't have a PayPal account?" If you want to pay with credit card, click on "continue" right below "don't have a PayPal account."


Securities: Please email Lindsay Goldberg at for more information. 


Donor Advised Fund: Please email Lindsay Goldberg at for more information.

Please consider making a gift through your will, trust, retirement account, or life insurance policy.  Please email Lindsay Goldberg at for more information.

Copies of the Foundation’s Form 990 Tax Information Statements can be found HERE.

The official registration and financial information of The RYR-1 Foundation may be obtained from the Pennsylvania Department of State by calling toll free, within Pennsylvania, 1 (800) 732-0999. Registration does not imply endorsement.


P.O. Box 13312, Pittsburgh, PA 15243

© 2014 by The RYR-1 Foundation. 



The information provided by The RYR-1 Foundation on this site or by any links to this site is for educational purposes only. It should not be interpreted as a recommendation for a specific treatment plan, product, medical, or healthcare provider. Use of this web site does not replace medical consultations with a qualified professional to meet the individual’s needs. In addition, medical information can change rapidly; therefore, some information may be out of date, and/or contain inaccuracies or typographical errors. Ultimately, if you have concerns about your health, particularly RYR-1 related diseases, you should consult your health care provider.