The RYR-1 Foundation is a non-profit, 501(c)(3), public charity-- your donation is tax-deductible. 


“I personally thank God for the RYR-1 Foundation. Thank you for all of your work and help. My afflicted with this condition. [She] and her parents work hard to help raise money for this research. We pray someday for a treatment or, better yet, a cure!! Thank you from the bottom of our hearts!”

--- Aunt of an affected individual 

There are many ways you can make a donation to the Foundation, including check, credit card, securities (stocks, bonds, mutual funds, etc), and donor advised fund (DAF). This foundation is a non-profit, 501(c)(3), public charity-- your donation is tax deductible. 


If you would like to make a donation in honor or memory of someone, please email Lindsay at with the following information: who the donation is in honor or memory of, who we should notify about the donation, and the contact information of who we are notifying. 


Check: Please make checks payable to The RYR-1 Foundation. Checks can be mailed to:


The RYR-1 Foundation

P.O. Box 13312

Pittsburgh, PA 15243


Credit Card: Please click on the "Donate" button below. You will need to enter the amount you want to donate then choose your method of payment: "Log in to PayPal" or "Don't have a PayPal account?" If you want to pay with credit card, click on "continue" right below "don't have a PayPal account."


Securities: Please email Lindsay Goldberg at for more information. 


Donor Advised Fund: Please email Lindsay Goldberg at for more information.


Copies of the Foundation’s Form 990 Tax Information Statements can be found HERE.

The official registration and financial information of The RYR-1 Foundation may be obtained from the Pennsylvania Department of State by calling toll free, within Pennsylvania, 1 (800) 732-0999. Registration does not imply endorsement.


P.O. Box 13312, Pittsburgh, PA 15243

© 2014 by The RYR-1 Foundation. 



The information provided by The RYR-1 Foundation on this site or by any links to this site is for educational purposes only. It should not be interpreted as a recommendation for a specific treatment plan, product, medical, or healthcare provider. Use of this web site does not replace medical consultations with a qualified professional to meet the individual’s needs. In addition, medical information can change rapidly; therefore, some information may be out of date, and/or contain inaccuracies or typographical errors. Ultimately, if you have concerns about your health, particularly RYR-1 related diseases, you should consult your health care provider.