RYR-1 International Family Conferences

The RYR-1 Foundation held the first ever RYR-1 International Family Conference in July 2016 and the second RYR-1 International Family Conference in July 2018. Combined, these events have hosted 388 attendees, representing 75 RYR-1-affected families from 31 states and eight countries. These conferences are unique opportunities for affected individuals and families to meet, form friendships, and develop a true RYR-1 community.

 

For a rare condition like RYR-1-related diseases, providing a forum for affected individuals and families to meet others like them has significant psychological value. When an affected individual or their family members seek to find someone else who understands what they are experiencing, a family conference becomes an invaluable and necessary resource. It is a goal of the Foundation to enhance and enrich these relationships within the RYR-1 community by hosting International Family Conferences every other year, with the next one scheduled for July 31-August 2, 2020.

For more on the 2020 RYR-1 International Family Conference, please click HERE.

For more on the 2018 RYR-1 International Family Conference, please click HERE.

For more on the 2016 RYR-1 International Family Conference, please click HERE.

Contact: 

P.O. Box 13312, Pittsburgh, PA 15243

© 2014 by The RYR-1 Foundation. 

Phone:

412-529-1482

The information provided by The RYR-1 Foundation on this site or by any links to this site is for educational purposes only. It should not be interpreted as a recommendation for a specific treatment plan, product, medical, or healthcare provider. Use of this web site does not replace medical consultations with a qualified professional to meet the individual’s needs. In addition, medical information can change rapidly; therefore, some information may be out of date, and/or contain inaccuracies or typographical errors. Ultimately, if you have concerns about your health, particularly RYR-1 related diseases, you should consult your health care provider.