To register for the 2022 RYR-1 International Family Conference (July 22, 2022 - July 24, 2022) in Pittsburgh, PA, USA, please click HERE!

For sponsorship opportunities, please email Nicole Becher, Program Director,

The Schooner Foundation

The generosity of the Schooner Foundation has allowed The RYR-1 Foundation to host the third RYR-1 International Family Conference. The RYR-1 Foundation is extremely grateful for their support of the organization and for their vision for this meeting. On behalf of all individuals and families affected by RYR-1-related diseases, The RYR-1 Foundation expresses our sincerest gratitude.


Thank you to our generous sponsors!

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