To register for the 2020 RYR-1 International Family Conference, please click HERE

July 31 - August 2, 2020

Hilton Orlando Bonnet Creek

Orlando, FL, USA

For sponsorship opportunities, please email Nicole Wallace, Program Director, nicole@ryr1.org

Thank you to the sponsors listed below for their support of the RYR-1 International Family Conference 2018. Please click on their logos to learn more about what they do.

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The Schooner Foundation

The generosity of the Schooner Foundation has allowed the RYR-1 Foundation to host the third RYR-1 International Family Conference. The RYR-1 Foundation is extremely grateful for their support of the Foundation and for their vision for this meeting. On behalf of all individuals and families affected by RYR-1-related diseases, the RYR-1 Foundation expresses our sincerest gratitude.

Contact: 

P.O. Box 13312, Pittsburgh, PA 15243

© 2014 by The RYR-1 Foundation. 

Phone:

412-529-1482

The information provided by The RYR-1 Foundation on this site or by any links to this site is for educational purposes only. It should not be interpreted as a recommendation for a specific treatment plan, product, medical, or healthcare provider. Use of this web site does not replace medical consultations with a qualified professional to meet the individual’s needs. In addition, medical information can change rapidly; therefore, some information may be out of date, and/or contain inaccuracies or typographical errors. Ultimately, if you have concerns about your health, particularly RYR-1 related diseases, you should consult your health care provider.