To register for the 2020 RYR-1 International Family Conference, please click HERE

July 31 - August 2, 2020

Hilton Orlando Bonnet Creek

Orlando, FL, USA

For sponsorship opportunities, please email Nicole Wallace, Program Director,

Thank you to the sponsors listed below for their support of the RYR-1 International Family Conference 2018. Please click on their logos to learn more about what they do.

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The Schooner Foundation

The generosity of the Schooner Foundation has allowed the RYR-1 Foundation to host the third RYR-1 International Family Conference. The RYR-1 Foundation is extremely grateful for their support of the Foundation and for their vision for this meeting. On behalf of all individuals and families affected by RYR-1-related diseases, the RYR-1 Foundation expresses our sincerest gratitude.


P.O. Box 13312, Pittsburgh, PA 15243

© 2014 by The RYR-1 Foundation. 



The information provided by The RYR-1 Foundation on this site or by any links to this site is for educational purposes only. It should not be interpreted as a recommendation for a specific treatment plan, product, medical, or healthcare provider. Use of this web site does not replace medical consultations with a qualified professional to meet the individual’s needs. In addition, medical information can change rapidly; therefore, some information may be out of date, and/or contain inaccuracies or typographical errors. Ultimately, if you have concerns about your health, particularly RYR-1 related diseases, you should consult your health care provider.