2018 RYR-1 International Family Conference

Please click on the photo below to begin a slideshow gallery. 

The RYR-1 Foundation, the only organization in the world that exists exclusively to serve the needs of and advocate for individuals with RYR-1-related diseases, hosted the second biennial RYR-1 International Family Conference in Pittsburgh, PA. The conference took place on Friday, July 13 - Sunday, July 15, 2018. 

Click below to view videos from conference lectures

Introduction to Myopathy & Dystrophy
Dr. Matthew Wicklund

Introduction to RYR-1-Related Diseases
Dr. A. Reghan Foley

Pulmonary Complications of RYR-1-Related Diseases

Dr. Oscar Henry Mayer

How to Interpret your RYR-1 Genetic Testing Results

Dr. Angela Gruber

Orthopaedic Complications of RYR-1-Related Diseases

Dr. David A. Spiegel

Click below to view slides from conference lectures

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Thank you to the sponsors listed below for their support of the 2018 RYR-1 International Family Conference. Please click on their logos to learn more about what they do. 

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The Schooner Foundation

The generosity of the Schooner Foundation has allowed the RYR-1 Foundation to host the second RYR-1 International Family Conference. The RYR-1 Foundation is extremely grateful for their support of the Foundation and for their vision for this meeting. On behalf of all individuals and families affected by RYR-1-related diseases, the RYR-1 Foundation expresses our sincerest gratitude.