Scenes from the
2018 RYR-1 International
Please click on photo below to begin slideshow.
The RYR-1 Foundation, the only organization in the world that exists exclusively to serve the needs of and advocate for individuals with RYR-1 muscle diseases, hosted the second biennial RYR-1 International Family Conference in Pittsburgh, PA. The conference took place on Friday, July 13 - Sunday, July 15, 2018.
Click Below to view videos from Conference lectures
Introduction to Myopathy & Dystrophy:
Dr. Matthew Wicklund
Introduction to RYR-1-Related Diseases:
Dr. A. Reghan Foley
Pulmonary Complications of RYR-1-Related Diseases
Dr. Oscar Henry Mayer
How to Interpret your RYR-1 Genetic Testing Results
Dr. Angela Gruber
Orthopaedic Complications of RYR-1-Related Diseases
Dr. David A. Spiegel
Click Below to view slides from Conference lectures
Thank you to the sponsors listed below for their support of the RYR-1 International Family Conference 2018. Please click on their logos to learn more about what they do
The Schooner Foundation
The generosity of the Schooner Foundation has allowed the RYR-1 Foundation to host the second RYR-1 International Family Conference. The RYR-1 Foundation is extremely grateful for their support of the Foundation and for their vision for this meeting. On behalf of all individuals and families affected by RYR-1-related diseases, the RYR-1 Foundation expresses our sincerest gratitude.