The first RYR-1 International Family Conference was a huge success! There were over 200 attendees, representing 75 RYR-1-affected families from 25 states and six countries. This conference would not have occurred without the leadership of Foundation trustee, Jeni Ryan. In addition, the Foundation is appreciative of our speakers and volunteers. Of course, what made this event so special was the opportunity for so many affected individuals and families to meet, form friendships, and develop a true RYR-1 community.
Click Below to view videos from Conference lectures
Click on the group photo below to view a photo album from the RYR-1 International Family Conference
Click Below to view slides from Conference lectures
Thank you to the sponsors listed below for their support of the RYR-1 International Family Conference 2016. Please click on their logos to learn more about what they do and its impact on RYR-1 myopathy.