The first RYR-1 International Family Conference was a huge success! There were over 200 attendees, representing 75 RYR-1-affected families from 25 states and six countries. This conference would not have occurred without the leadership of Foundation trustee, Jeni Ryan. In addition, the Foundation is appreciative of our speakers and volunteers. Of course, what made this event so special was the opportunity for so many affected individuals and families to meet, form friendships, and develop a true RYR-1 community. 

Click Below to view videos from Conference lectures

Click on the group photo below to view a photo album from the RYR-1 International Family Conference

Click Below to view slides from Conference lectures

Thank you to the sponsors listed below for their support of the RYR-1 International Family Conference 2016. Please click on their logos to learn more about what they do and its impact on RYR-1 myopathy. 



P.O. Box 13312, Pittsburgh, PA 15243

© 2014 by The RYR-1 Foundation. 



The information provided by The RYR-1 Foundation on this site or by any links to this site is for educational purposes only. It should not be interpreted as a recommendation for a specific treatment plan, product, medical, or healthcare provider. Use of this web site does not replace medical consultations with a qualified professional to meet the individual’s needs. In addition, medical information can change rapidly; therefore, some information may be out of date, and/or contain inaccuracies or typographical errors. Ultimately, if you have concerns about your health, particularly RYR-1 related diseases, you should consult your health care provider.