Board of Advisors

MARCIE EPSTEIN

Wife of Steve and Mother of Jackson, who are both affected by RYR-1

 

MATTHEW GOLDBERG, JD

Reliability and Operations Compliance at a public utility company

CODY HODGSON

Director of Alumni Hockey Relations, Nashville Predators 

JACQUELINE HOFFMAN-ANDERMAN, RN, BSN
Mother of Maddie, affected by RYR-1

DREW HUSETH, AICP

Individual affected by RYR-1 and Land Entitlement Manager for Woodside Homes

SOFIA LEON

Mother of Tommie, member of a large family with more than 20 members affected by Central Core Disease

 

JEREMY NATHANS, MD, PHD

Professor in the Departments of Molecular Biology and Genetics, Neuroscience, and Ophthalmology, Johns Hopkins Medical School

AMY A. PERRIN, MS, FNP-C

Mother of Courtney, affected by RYR-1

BRENTNEY SIMON

Individual affected by RYR-1 (recessive minicore)

 

AVI SWERDLOW

Product Manager, Google

 

YAEL SWERDLOW

Special Education Consultant