Board of Advisors

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MARCIE EPSTEIN

Wife of Steve and Mother of Jackson, who are both affected by RYR-1

 

MATTHEW GOLDBERG, JD

Reliability and Operations Compliance at a public utility company

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CODY HODGSON

Director of Alumni Hockey Relations, Nashville Predators 

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JACQUELINE HOFFMAN-ANDERMAN, RN, BSN
Mother of Maddie, affected by RYR-1

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SOFIA LEON

Mother of Tommie, member of a large family with more than 20 members affected by Central Core Disease

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JESSICA R NANCE, MD

Assistant Professor, Johns Hopkins Pediatric Neurology and Neuromuscular Disorders, Kennedy Krieger Center for Genetic Muscle Disorders

 

JEREMY NATHANS, MD, PhD

Professor in the Departments of Molecular Biology and Genetics, Neuroscience, and Ophthalmology, Johns Hopkins Medical School

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AMY A. PERRIN, MS, FNP-C

Mother of Courtney, affected by RYR-1

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BRENTNEY SIMON

Individual affected by RYR-1 (recessive minicore)

 

AVI SWERDLOW

Product Manager, Google

 

YAEL SWERDLOW

Special Education Consultant

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MATT TOMPKINS, PhD

Chief Operating Officer at T.C. Defense

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