Board of Advisors

MARCIE EPSTEIN

Wife of Steve and Mother of Jackson, who are both affected by RYR-1

 

MATTHEW GOLDBERG, JD

Reliability and Operations Compliance at a public utility company

CODY HODGSON

Director of Alumni Hockey Relations, Nashville Predators 

JACQUELINE HOFFMAN-ANDERMAN, RN, BSN
Mother of Maddie, affected by RYR-1

DREW HUSETH, AICP

Individual Affected by RYR-1 and Land Entitlement Manager for Woodside Homes

JEREMY NATHANS, MD, PHD

Professor in the Departments of Molecular Biology and Genetics, Neuroscience, and Ophthalmology, Johns Hopkins Medical School

 

AVI SWERDLOW

Product Manager, Google

 

YAEL SWERDLOW

Special Education Consultant

Contact: 

P.O. Box 13312, Pittsburgh, PA 15243

© 2014 by The RYR-1 Foundation. 

Phone:

412-529-1482

The information provided by The RYR-1 Foundation on this site or by any links to this site is for educational purposes only. It should not be interpreted as a recommendation for a specific treatment plan, product, medical, or healthcare provider. Use of this web site does not replace medical consultations with a qualified professional to meet the individual’s needs. In addition, medical information can change rapidly; therefore, some information may be out of date, and/or contain inaccuracies or typographical errors. Ultimately, if you have concerns about your health, particularly RYR-1 related diseases, you should consult your health care provider.