Board of Advisors

Marcie Epstein, Advisor: Wife and Mother of Individuals Affected by RYR-1


Matthew Goldberg, Advisor: Reliability and Operations Compliance at a public utility company

Cody Hodgson, Advisor: Director of Alumni Hockey Relations, Nashville Predators 

Jacqueline Hoffman-Anderman, RN, BSN, Advisor: Mother to Maddie, affected by RYR-1 Related Myopathy

Drew Huseth, AICP, Advisor: Individual Affected by RYR-1 and Land Entitlement Manager for Woodside Homes

Jeremy Nathans, MD, PhD, Advisor: Professor in the Departments of Molecular Biology and Genetics, Neuroscience, and Ophthalmology, Johns Hopkins Medical School


Avi Swerdlow, Advisor: Product Manager, Google


Yael Swerdlow, Advisor: Special Education Consultant


P.O. Box 13312, Pittsburgh, PA 15243

© 2014 by The RYR-1 Foundation. 



The information provided by The RYR-1 Foundation on this site or by any links to this site is for educational purposes only. It should not be interpreted as a recommendation for a specific treatment plan, product, medical, or healthcare provider. Use of this web site does not replace medical consultations with a qualified professional to meet the individual’s needs. In addition, medical information can change rapidly; therefore, some information may be out of date, and/or contain inaccuracies or typographical errors. Ultimately, if you have concerns about your health, particularly RYR-1 related diseases, you should consult your health care provider.