
Board of Advisors
MARCIE EPSTEIN
Wife of Steve and Mother of Jackson, who are both affected by RYR-1
MATTHEW GOLDBERG, JD
Reliability and Operations Compliance at a public utility company
CODY HODGSON
Director of Alumni Hockey Relations, Nashville Predators
JACQUELINE HOFFMAN-ANDERMAN, RN, BSN
Mother of Maddie, affected by RYR-1
SOFIA LEON
Mother of Tommie, member of a large family with more than 20 members affected by Central Core Disease
JESSICA R NANCE, MD
Assistant Professor, Johns Hopkins Pediatric Neurology and Neuromuscular Disorders, Kennedy Krieger Center for Genetic Muscle Disorders
JEREMY NATHANS, MD, PhD
Professor in the Departments of Molecular Biology and Genetics, Neuroscience, and Ophthalmology, Johns Hopkins Medical School
AMY A. PERRIN, MS, FNP-C
Mother of Courtney, affected by RYR-1
BRENTNEY SIMON
Individual affected by RYR-1 (recessive minicore)
AVI SWERDLOW
Product Manager, Google
YAEL SWERDLOW
Special Education Consultant
MATT TOMPKINS, PhD
Chief Operating Officer at T.C. Defense