Who We Are
The RYR-1 Foundation is a non-profit, 501(c)(3) public charity, which was started by members of the Goldberg Family, who have been affected by an RYR-1-related disease.
Currently, there is no other organization that exists solely to advocate for and serve the needs of patients and families affected by RYR-1-Related Diseases (RYR-1-RD). The goal of The RYR-1 Foundation is to fill this much-needed void.
Who We Help
The RYR-1 Foundation works closely with individuals and families affected by RYR-1-RD, researchers, biotech and pharmaceutical industries, and healthcare providers from across the globe to facilitate communication in the field of RYR-1-RD, fund research, advance effective therapies, and optimize standards of care to enhance the quality of life in affected individuals.
Clinical Care Guidelines
The Clinical Care Guidelines is a free, informative guide for individuals and families affected by RYR-1-RD with practical and easily understood information.
Pour télécharger Lignes directrices en matière de soins cliniques, veuillez cliquer sur :
Um die Richtlinien für die klinische Versorgung herunterzuladen, bitte klicken:
Чтобы загрузить Руководство по оказанию клинической помощи, пожалуйста нажмите здесь:
News
Our Impact
GET INVOLVED
The RYR-1 Foundation is a non-profit, 501(c)(3), public charity--your donation is tax-deductible.
Thank you for your interest in raising funds to support The RYR-1 Foundation. Our success depends on the initiative of supporters like YOU.
How Your Donation Creates Hope and Connection
How Your Donation Creates Hope and Connection
The RYR-1 Foundation is transforming lives through research, awareness, and community. With the help of our generous supporters, we’ve driven scientific discovery and built a strong, global network of families affected by RYR-1-RD.
Your support allows us to fund cutting-edge research and expand our outreach and resources—helping individuals and families affected by RYR-1-RD find information, support, and hope.
Together, we are “Strength in Numbers.”
